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    • About WSRA
    • About Wolfram Syndrome
    • WSRA Advisory Board
    • Upcoming WS Events
  • Research
    • Treatment Strategies
    • Treatment Pipeline
    • WS Research Groups
    • Clinical Trials
    • Patient Registries
    • WU Wolfram Research Clinic
    • WS Research Library
  • For Researchers
    • For Researchers
    • WFS1 Structure
    • WS Research Groups
    • WS Research - 2021 - 2022
    • WS Research Library
  • For Clinicians
    • For Clinicians
    • Wolfram Syndrome Clinical Guidelines >
      • Psychiatric Features of Wolfram Syndrome
      • Clinical Features of WS
      • Clinical Diagnosis/Initial Investigation
      • Clinical Management of WS/Treatment Options
      • Genetic Diagnosis of WS-Requisition
    • List of WS Clinicians
    • Add a Clinician
    • WS Research Library
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    • Patient Information Links
    • What is Wolfram Syndrome
    • Treatment Pipeline
    • WS Foundations
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  • Donate to WS Research
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  • Contact WSRA/More Info
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Support WS Research

Foundations and Funds
​Supporting WS Research

Listed In Alphabetical Order

Alianza de Familias Afectadas por el Síndrome de Wolfram

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The Alliance of Families Affected by Wolfram Syndrome, headquartered in Madrid, is the second association of this disease in Spain, and was created with the aim of bringing together those affected and promote research projects for the disease, not only in Spain but also in other neighboring countries.

Asociación Española Para La Investigación Y Ayuda Del Síndrome De Wolfram

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The Association for Research and Assistance to Wolfram Syndrome has a multidisciplinary clinical team with knowledge of WS following WS patients, coordinates volunteers who organize events, care for patients and collaborate in clinical reviews and social networks, and provides clinical conferences for WS.


Association du Syndrome
​de Wolfram

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The Association du Syndrome de Wolfram  was born from the fierce will of families to fight against this disease.  After 10 years of existence,  the association has organized 7 international congresses of researchers and clinicians, created an international network which is enriched each year, initiated a European patient register, launched programs of research, several of which it financed, set up two multidisciplinary consultations in France dedicated to this disease and organized investigations into attacks that had not yet been studied by the medical profession.

The Ellie White Foundation

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The mission of The Ellie White Foundation for Rare Genetic Disorders is to fund state-of-the art research to develop a cure for Wolfram Syndrome and other rare genetic disorders.


The Eye Hope Foundation

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The mission of The Eye Hope Foundation is to stimulate and support research for treatments that can stop the progression of Wolfram Syndrome as well as treatments that will restore  damaged cells. ​​

The Gentian Association

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 The purpose of The Gentian Association site is to create a meeting point for Wolfram syndrome. Donations are always welcome, but its even more important for us to reach other people in the world: the more people look into it, the more we can study new cases, the simpler it is for us to find a treatment.  


 Maya Silberman Fund

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All donations to the Maya Silberman Fund will directly fund Dr. Urano’s lab at Washington University in Saint Louis.  
To donate go to: https://gifts.wustl.edu and note “Maya Silberman Fund #30820” under “I prefer to enter my own designation.”

THE SNOW FOUNDATION

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The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. The Snow Foundation has expanded its mission over the last ten years. It is now leading a global movement of patients, families, doctors, and researchers who will work together to improve the odds for everyone affected by WS. Our vision is threefold, Research, Patient Services, and Healthcare Improvement. 
Rare Diseases…Common Problems


The Unravel Wolfram Syndrome Fund

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The Unravel Wolfram Syndrome Fund  was established by the Gladstone family through Washington University in St. Louis School of Medicine to provide financial support for Dr. Fumi Urano’s research group as they work to discover and test new treatments and ultimately a cure for Wolfram syndrome. All donations go directly to Dr. Urano's research group.

Wolfram Syndrome Germany

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Wolfram Syndrome
​UK 

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Wolfram Syndrome UK (WSUK) is the only Wolfram syndrome charity and support group in the UK. As a national charity we help fund research and provide support for those affected by the condition and their families. We feel the more people that know about WS the better; and will endeavour to make sure that hospitals, Doctors and other health care professionals are aware of this site.


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  • Home
    • About WSRA
    • About Wolfram Syndrome
    • WSRA Advisory Board
    • Upcoming WS Events
  • Research
    • Treatment Strategies
    • Treatment Pipeline
    • WS Research Groups
    • Clinical Trials
    • Patient Registries
    • WU Wolfram Research Clinic
    • WS Research Library
  • For Researchers
    • For Researchers
    • WFS1 Structure
    • WS Research Groups
    • WS Research - 2021 - 2022
    • WS Research Library
  • For Clinicians
    • For Clinicians
    • Wolfram Syndrome Clinical Guidelines >
      • Psychiatric Features of Wolfram Syndrome
      • Clinical Features of WS
      • Clinical Diagnosis/Initial Investigation
      • Clinical Management of WS/Treatment Options
      • Genetic Diagnosis of WS-Requisition
    • List of WS Clinicians
    • Add a Clinician
    • WS Research Library
  • For Patients
    • Patient Information Links
    • What is Wolfram Syndrome
    • Treatment Pipeline
    • WS Foundations
    • Clinicians Treating WS
    • Patient Registries
    • Clinical Trials
  • Donate to WS Research
    • Foundations Supporting WS Research
  • Contact WSRA/More Info
    • Contact WSRA
    • PDF Files for download