Foundations and Funds
Supporting WS Research
Listed In Alphabetical Order
The Alliance of Families Affected by Wolfram Syndrome, headquartered in Madrid, is the second association of this disease in Spain, and was created with the aim of bringing together those affected and promote research projects for the disease, not only in Spain but also in other neighboring countries.
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The Association for Research and Assistance to Wolfram Syndrome has a multidisciplinary clinical team with knowledge of WS following WS patients, coordinates volunteers who organize events, care for patients and collaborate in clinical reviews and social networks, and provides clinical conferences for WS.
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The Association du Syndrome de Wolfram was born from the fierce will of families to fight against this disease. After 10 years of existence, the association has organized 7 international congresses of researchers and clinicians, created an international network which is enriched each year, initiated a European patient register, launched programs of research, several of which it financed, set up two multidisciplinary consultations in France dedicated to this disease and organized investigations into attacks that had not yet been studied by the medical profession.
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Associação Brasileira da Sindrome de Wolfram - (ABSW) has a philanthropic, promotional, recreational, and educational nature. ABSW aims to: Support those with Wolfram syndrome and their families; Forge partnerships with national and international governmental and non-governmental organizations, to raise funds for medical research; Promote educational and informative lectures about Wolfram syndrome; Disseminate both scientific and educational information about the syndrome through social media; Organize groups of volunteers to support patients and their families; Promote events to raise funds to help patients without financial means and support medical research to find new treatments for Wolfram syndrome; Inform carriers, together with the Public Authorities, of their rights, which are: provision of medications, health equipment and other needs.
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Be a Tiger Foundation humbly strives to achieve an immediate impact in the ultra-rare disease space. Our mission is to accelerate the discovery of treatments and cures for Wolfram Syndrome and eventually other rare and ultra-rare diseases. Through your generous donations, we directly fund and support clinical research aimed to treat and cure Wolfram Syndrome. The expectation is that 100% of your contributions made to the foundation will go toward funding a cure, so that your generosity will have maximum impact on patients and families affected by this disease. Your donation dollars provide hope… inspiring kids and families to BE A TIGER while winning the fight against Wolfram Syndrome.
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The mission of The Ellie White Foundation for Rare Genetic Disorders is to fund state-of-the art research to develop a cure for Wolfram Syndrome and other rare genetic disorders.
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The mission of The Eye Hope Foundation is to stimulate and support research for treatments that can stop the progression of Wolfram Syndrome as well as treatments that will restore damaged cells.
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The purpose of The Gentian Association site is to create a meeting point for Wolfram syndrome. Donations are always welcome, but its even more important for us to reach other people in the world: the more people look into it, the more we can study new cases, the simpler it is for us to find a treatment.
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The Jewish Wolfram Network is dedicated to raising awareness, advancing research, and supporting families affected by the Ashkenazi subtype of Wolfram syndrome. Our mission is to connect patients, caregivers, medical professionals, and researchers to foster understanding, accelerate medical breakthroughs, and improve the lives of those living with this condition.
We believe in the power of community, advocacy and science — and we're here to make a difference, together. |
All donations to the Maya Silberman Fund will directly fund Dr. Urano’s lab at Washington University in Saint Louis.
To donate go to: https://gifts.wustl.edu and note “Maya Silberman Fund #30820” under “I prefer to enter my own designation.” |
The Snow Foundation is a collective voice for Wolfram syndrome patients, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. The Snow Foundation has expanded its mission over the last ten years. It is now leading a global movement of patients, families, doctors, and researchers who will work together to improve the odds for everyone affected by WS. Our vision is threefold, Research, Patient Services, and Healthcare Improvement.
Rare Diseases…Common Problems |
The Unravel Wolfram Syndrome Fund was established by the Gladstone family through Washington University in St. Louis School of Medicine to provide financial support for Dr. Fumi Urano’s research group as they work to discover and test new treatments and ultimately a cure for Wolfram syndrome. All donations go directly to Dr. Urano's research group.
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Wolfram Syndrome UK (WSUK) is the only Wolfram syndrome charity and support group in the UK. As a national charity we help fund research and provide support for those affected by the condition and their families. We feel the more people that know about WS the better; and will endeavour to make sure that hospitals, Doctors and other health care professionals are aware of this site.
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